Sickle cell warrior shares struggles, raises awareness about genotype

• A Nigerian woman shares her experience of living with sickle cell disease to raise awareness about genotype compatibility in relationships.

• In a heartfelt post on her social media account, she emphasized the importance of considering genetic compatibility when marrying.

• Imabong, with tears streaming down her face, emphasized the long-term suffering that children, including herself, can endure due to such a decision.

A young woman from Nigeria has bravely shared her experiences with the significant challenges posed by sickle cell disease, aiming to raise awareness about the importance of genotype compatibility in romantic relationships.

In a poignant message on her social media account @theimabong, she warned against the dangers of entering into marriage without considering genetic factors. With tears streaming down her face, Imabong expressed how such choices can lead to a lifetime of suffering for children, including herself.

Imabong detailed the numerous hardships she has faced, underscoring the critical need for education and counseling regarding genotypes.

Sickle Cell: The irreversible challenges of neglecting genotype compatibility

• Limping: She disclosed that she developed a permanent limp twelve years ago as a means to cope with pain, which has rendered her unable to wear flat shoes. The cost of corrective medical treatment, estimated at over $15,000, remains unattainable due to financial limitations.

• Medication Addiction: The sickle cell warrior highlighted the dangers of becoming reliant on potent pain medications necessary for managing her condition. She explained that prolonged use could result in kidney failure, compounding her health issues.

• Multiple Surgeries: After undergoing three surgeries and receiving epidural anesthesia, she noted that the side effects, including chronic back pain, have severely affected her quality of life and may have shortened her lifespan.

• Emotional and Mental Effects: She shared her experiences with stigma, depression, and suicidal thoughts, which have been intensified by societal insensitivity, including inquiries about her yellow eyes and physical appearance.

• Financial Strain: The management of sickle cell disease has placed a significant financial strain on her, with substantial costs associated with medications, stress relief, and overall health maintenance.

Imabong concluded with a heartfelt appeal, urging couples to consider genotype compatibility prior to marriage. She stressed that the difficulties faced by individuals living with sickle cell disease are often preventable, and increased awareness can help spare future generations from unnecessary suffering.

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